Monday, 31 March 2014

Seen in clinic this afternoon. Went with a feeling that all was not well, as I have still been so tired and lots of liver area discomfort. Sure enough, the blood levels have stalled at AST 69 and ALT 91. At least they are no worse, but I was so hoping for a reduction in the pred today. Instead, I have to stay on 30mg. He has restarted a small dose of Azathioprine 25mg. Bloods again Friday and back to clinic next Monday. Says he will ring Friday if bloods are worse and increase pred again if necessary. I am so fed up of this. My patience is running out. Seven months and no further forward. Still getting loads of cramp so he has also restarted the phosphate sandoz as levels are very low and requested vit D blood test to see if thats the cause. Good intentions for healthy/low sugar diet are out the window and weight increasing, face fat and hairy.....mood miserable.
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4 comments:

  1. Anonymous2 April 2014 at 10:00

    Hi Penny hope your getting on ok with the aza? it still makes me feel a bit sickie when I take it, I suppose because its such a strong drug. Let us know how your bloods are Friday. xx Emma

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  2. Auto immiune hepatitis2 April 2014 at 11:17

    Hi Emma.............feeling sick! Am taking it in the evenings this time, but feel very nauseous by 9-10pm. When's your next bloods? x

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    1. Anonymous4 April 2014 at 11:39

      Hi, Sorry you are still feeling so rough. How about taking the Aza a bit later just before a snack, then hopefully you will sleep through the nausea.are you taking it before your evening meal as I find that helps. I try not to get too hungry as that always makes me feel sicky. Hope you soon become more tolerant of it. Try not to worry too much if they increase the steroid as that may be the only way to really see it off. The side effects are miserable though especially the cramps and fat hairy face and I had acne but at least it helps with the wrinkles, that's if you have any! The side effects do soon disappear though. Really hope your bloods are ok. Have a good weekend. love Jx

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  3. Auto immiune hepatitis4 April 2014 at 11:56

    Hi Jo Hadn't thought about the wrinkles, but you're right..........who needs botox??! I wasn't so nauseaous last night, I take it after food with a whole glass of water (as it says to)......then I take the effervescent phosphate (yuk) then at bedtime I take the omeprazole! If it doesn't settle, I'll try changing things around. Have a good weekend too x

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