Tuesday, 4 March 2014
Irrationaly anxious about results tomorrow. Still in a lot of discomfort and tired all the time. Have also now got to attend a meeting with work on 25th to discuss my absence. RCN have been brilliant and will attend. have spent the day photocopying and gathering all the letters/job description/contract/chronology of events as requested by them. Am going to ask Prof to write something re prognosis etc. feels like going into battle, and could do without stress. Also SSP runs out on 27th March, so have to provide a load of stuff for benefits people and have some sort of medical in order to get ESA from then on. The most benefit I will get is £72 per week...................that equals my salary...........NOT!!!! How P.... off are we all that we don't even qualify for free prescriptions???? Other life long conditions that require eternal medication do....but not AIH apparently. The world feels such a fair and balanced place sometimes doesn't it?
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Hi Penny I hope today goes well. Sorry to hear that your still not feeling that great. I hope this is just your body recovering and not a sign that the drugs are not working?
ReplyDeleteIts not surprising your feeling anxious about today.
Anyway just a quick one xxx Emma x
Hi Emma, how did you get on Monday? Did you have the biopsy? Are things improving for you? I do hope so. My bloods are still high and being very stubborn!!
ReplyDeleteHi penny.No i didn't have biopsy just lots of blood. Had consultation on Monday and it was decided that i shall remain on steroids long term as everytime i try to come off them i relapse.He said because i was young when i got it i have a more aggressive type. Im feeling better in myself think the high dose of steroids are starting to work. Xx i hope anyway else it will be biopsy.I will post on your new thread with regards to your good self
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