Had planned meeting at work this morning. All went well, and they were very supportive/understanding. Will basically remain off sick until the beginning of July at the earliest. We have to meet again to review things the first week in May, but the plan (if all continues to go well) is for a phased return in July . They will make reasonable adjustments such as changing my base (so I do less driving) and reducing hours etc should I need to. Felt very sorry for my manager, who is struggling to provide cover for my area, but unable to advertise my post. There is a case list of approx 150 people without an adequate service due to me being off sick. The situation is far from ideal, but I don't want to go back too soon and disrupt everything again should it not work out. Came away relieved that the pressure is off for 3 months, but utterly exhausted from the drive and the anxiety of the morning. Slept for 2 hours this afternoon and felt much better.
Appetite terrifyingly good..........weight gain.........aghh!!
Hi Penny, I am so glad that you have managed to sort out something solid at work, it must be a huge relief but you will have to try hard not to worry about what is happening while you are away and just concentrate on getting better. Once you are back it will very quickly feel as if you have never been away and they will manage somehow. I hope that your levels are still going in the right direction. Your ALT is nearly normal now, brilliant! No wonder you felt so tired after Tuesday morning's meeting. Regular naps are definitely the way forward for the next few weeks I would think. Emma mentioned about Endoscopy, well, I had one when they were trying to find out why my ALT was going up and up before the final diagnosis. My consultant said recently that another one may be necessary as sometimes the AIH can cause damage . I got the impression it would be more of a routine check a bit like us having six monthly abdominal scans. I have just had my scan so I will let you know if I have to have one and why! I hope you have had a relaxing Mothering Sunday and enjoyed the lovely weather. Take care, Love Joxx
ReplyDeleteHi Jo thanks for your comments x No mention of endoscopy today (I didnt ask!) I did have a lovely day yesterday, wall to wall sunshine in Cornwall for a change x
DeleteHi Penny How are you? sorry I haven't been in contact for so long. I had a little break away to woolacombe which was lovely. Had my hospital app this afternoon and its bad news my alt is now 600 and ast 560. On 40mg at the mo which doesn't seem to be doing anything. Its just a waiting game I think.
ReplyDeleteI've gained over half a stone now...feeling very sorry for myself. xxxx
Hi Emma, Glad to hear you had a little break, but soooooo sorry about your levels x Did you see Usama today? We obviously missed each other again!! I totally get the feeling sorry for yourself bit its just so disheartening when its all out of your control isnt it? Mine have stalled at 69 and 91 so I have to stay on 30mg still but have recommenced the aza tonight. Will keepit all crossed for you, I really do have an idea how you are feeling xxxxx
DeleteHi Penny no I saw a registrar which was a bit annoying as my numbers are bad. She was very good but its nice to see someone you know. She said she was going to discuss me with Dr Cramp today. I'm just getting fed up, you take all these tablets and suffer the side effects for the numbers to get worse. I got very upset last night and had to ring my mum for moral support although she comes to every appointment and is aware of what's going on, sometimes you just need your mum.
ReplyDeleteSo sorry to hear yours haven't improved further. How are you feeling after your first dose of the aza? xxxx Emma
I've had to admit defeat and be signed off sick again the tiredness is beating me!
Oh Emma I'm so sorry x it's really good you have your mum nearby to support you though x im not surprised you are tired. .just give in. .you have no choice x I was a bit nauseous after the first aza...looking forward to the next dose tonight. ....not xx
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