Sunday, 2 March 2014
Just beginning to feel a bit more human now. Thanks for all the good wishes. Found myself in a bed next to another girl with AIH also under Prof Cramp! That was the real positive for me, to actually have a chance to chat with someone who understands the condition..........and someone who was really positive and happy to be in touch, and who lives in Cornwall! Came home and pretty much straight to bed on Friday. Felt very sore and unwell, and hadn't really expected to. Interesting that everyone then tells me the first biopsy is ok then they tend to get worse!!!! Anyway, all over now, and awaiting results. Spent a quiet, spoilt day with my Mum supporting me yesterday which was lovely, and the sun was shining..............not so today, we have returned to a mud bath and Donks NOT happy. have managed to do a little more today, but still a bit tender and not wanting to lift/bend etc. Now on 60mg pred daily since Friday, and feel a bit peculiar, and unsure about driving as a result...so haven't yet. Appetite still a bit down, wanting little and often rather than a big meal. Still have glucose off the scale in urine, but Prof felt as the fasting glucose was within range, my sugar levels were just fluctuating due to steroids and I just needed to be careful about diet. Headache seems cured, but raging cramp in hands and feet today. Bloods were taken before discharge, and I'm for further bloods tomorrow, then see Prof on Weds for all results.
Subscribe to:
Post Comments (Atom)
Hi penny so glad your home and hopefully on the mend, how great was that meeting someone face to face with aih I would love that, how you doing on the 60mg, are you starting to get loads off energy, well it's official I start back to work on sat, popped in on Friday to see everyone, it was really lovely cuddles galore, I had to laugh at one woman who said I was looking well but a bit chubby in the face if only they knew the half off it eh, the sun has been shining here for three days now which suddenly made me think I was wonder woman on sat and set about doing some gardening then went for a walk for an hour all very enjoyable at the time but yesterday I felt awful so it was a complete rest day and bed by eight thirty, I really hope your starting to pick up again and feel a bit more like yourself, please take care thinking off you as always xxx
ReplyDeleteUnfortunately I still have no energy! Weird, as last time I was on high doses I was almost manic............not this time, remain shattered. Can't believe you are going back to work! You sound really excited, I'm so pleased for you. Do be careful though, and rest whenever you can. I hope you have a great day, make sure you have NOTHING to do on Sunday though!!! (I know...I can talk!) x
DeleteHi penny your right I was quite excited about returning to work and hopefully feeling normal, Ive been feeling not too bad up until sat then it all seemed to go pear shaped on Sunday, headache joint ache totally shattered and I've got this really strange bruising on one arm that seems to be getting worse instead off better, don't know if it's the mycophenolate just starting to kick in as that's me been on it four weeks now, not really sure what's going on to be honest, this illness is a complete mystery too me, got consultant on Thursday so should get a clearer picture then but it's kind off taken the shine off returning to work as I am worrying now that am just not going to be able for the 9 hour shift but I've said it now so I have too go, how are you doing? Do you feel any improvement on the high doze, good luck for tomorrow will be thinking off you, take care xxx
DeleteHi colleen, I got really anxious about the return to work too. It's just that having been off so long you can't imagine being back. Try to look after yourself, sit down whenever you can, don't stand talking to someone if a chairs nearby!! people will understand.........you might be a bit better, but you're still "not right", so don't be afraid to say so. Not sure about the bruising, sounds a bit worrying, but if you are seeing the consultant Thursday I'm sure they will shed some light. Thanks for thinking of me tomorrow, am seriously stressed about my blood levels. Still have lots of discomfort in the liver/stomach area, so am fearing poor results. Also, I still have no energy despite the 60mg, how weird is that?? Try to get lots of rest, thoughts with you as always x
DeleteHello Penny.So good that you are feeling brighter and great to meet a fellow sufferer in hospital. It must have made you feel that you are not alone in this and good to share how you are feeling and know that you are not going mad or imagining it all! It is not surprising you are feeling a bit weird on 60mg as it is quite a high dose, I remember the cramps in hands and feet well and I didn't actually drive for 3 months when on high pred as my head was too spinny and buzzy. My consultant did not recommend driving then either. Glad you had a relaxing day with your Mum, you need lots of treaty things to keep your spirits up. Hoping for better results for you this week. Colleen, glad you are feeling better too but you may have got a bit too excited and overdone it a bit on Saturday!! I completely understand that as have done it myself and always sufferred afterwards. Sometimes it is definitely worth it though just to feel normal again! You will all eventually get energy and stamina back, Honest!! Love to you all Joxxx
ReplyDeleteI'm going to ask what he thinks about the driving, it's a real pain if I can't, but to be honest I don't feel that safe at the moment, it's kind of like an out of body experience feeling (well not that I've ever had one!) Really sore still, not sure if thats from the biopsy, or if bloods are still rising....results Weds...feels like waiting for exam results x
Delete