Wednesday, 12 March 2014

Feeling a bit better the last 2 days. Stomach much preferring the omeprazole twice a day, and seem to have better appetite (whoops....small bannoffee pie consumed tonight) Have managed to be a bit busier, though remain tired in the afternoon and have needed a nap. Brain fog slightly improved also. Could things finally be turning the corner? I hardly dare hope.
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4 comments:

  1. Anonymous13 March 2014 at 13:03

    Hi Penny, sorry I haven't posted for a while. I'm so pleased to hear that your feeling a bit better and getting some of your energy back, you have had a rough ride.
    As for me my numbers have stayed the same despite the steroids no worse but no better. I'm due to see him Monday so we will see.
    I had a really confusing morning at the doctors on Monday. Went down to get my weekly bloods done and had a little peak at the screen like you do...anyway under the aih it had chronic kidney disease. I questioned the nurse as I have never been told this. (I know my kidney function is always abnormal but I thought this was the drugs.) She told me that my kidney function is quite poor for someone of my age and that it probably just goes hand in hand with what I have got. I left the surgery quite upset and angry that a) This has never been mentioned to me
    b) That I am meant to just accept her explanation that its 'one of those things'
    I will definitely be bringing this up on Monday.
    I'm feeling ok in myself just tired and disgusted with the amount I have been eating...no bikini bod for me:(
    Emma xxxx

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    Replies
    1. Auto immiune hepatitis13 March 2014 at 13:17

      Oh Emma, thats terrible! I get the feeling we are supposed to just accept all sorts of things, and just be grateful we're alive. I feel I have to keep questioning things too. otherwise they somehow assume they don't need to tell you anything. I'm still banging on about glucose in my urine. Maybe they are right and I don't need to worry, but it can't be ok for this to continue without somesort of damage surely? It doesn't seem to matter what I eat, or when I test. I appreciate that most people aren't able to test their wee, and would therefore be none the wiser............but it's little comfort. Presumably my kidneys are not doing what they should, or the glucose wouldn't be showing up?? I,ve got bloods tomorrow, and will ask for another random glucose level to be done. What time are you at hosp on Monday? I have a 16.10 appt. (won't be in a bikini either!!!!) x

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    2. Anonymous15 March 2014 at 08:45

      Hello Emma,
      That is awfull and what a shock seeing that on your records having had no idea! I hope you are able to get some answers and an explanation on Monday, it may well be nothing to worry about. I hope so. Hope you and Penny both get on well on Monday and that your levels soon start to go down. Is it Budesonide that you take? anyway, all the bet and have a good weekend. Love Jox

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  2. Anonymous14 March 2014 at 08:21

    Hi penny so glad your starting to feel better, really hope your right and this is you on the mend again, well work went well the last two days managed it with no tiredness and no aches and pains really enjoyed my two days, not sure what's happened today but I feel really awful, tired sore and really sicky, maybe this is just how it's going to be with this illness, I really wish I could just feel like my old self but I don't think that's going to happen any time soon or maybe this is as good as its going to get and I will just have to deal with it, I hope your still enjoying the good weather, it's back to winter here very cold windy and wet, am hoping for a brighter weekend so I can get out for one fresh air, going to just take it easy over the next few days before back to work on tuesday, enjoy your weekend and I look forward to hearing how you get on on Monday, take care xxx

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