Haven't written for a bit. Partly as I couldn't be bothered, and also as have been feeling rather negative. I've been on the increased dose of azathioprine for several weeks, and since then I feel more tired and not as good as I did when I was only on 50mg. I don't know if this is the cause, or if (probably more likely) it's that the steroids are now at a much lower dose. Whilst steroids have lots of horrid side effects, they do make you feel more energetic. In the last few weeks, I have stalled with progress. I am needing an afternoon nap, and struggling to get out of bed when the alarm goes off in the morning. I'm aware of every ache and pain, and running out of steam by lunchtime. My hair is falling out and I'm finding looking in the mirror difficult. I have had constant discomfort where my ribs dig into my (presumably still enlarged) liver, so cannot sit/lie comfortably. I'm beginning to wonder if I will be able to cope with  return to work if I don't get moving forward again soon; and that is not what I wanted to face.
On the plus side,
1) cramps in hands/feet are reduced since starting phosphate 10days ago
2)Am using my new juicer (not so keen on veg juice though)
3)weight about the same as before I was taken ill
4)Am driving/dog walking/managing most of donkey care
5)M loves me despite my appearance and constant whinging