Monday, 4 November 2013

Busy day.....but lovely and sunny. Saw my hepatologist this afternoon. Liver bloods are just about normal now! However, as I've not been as good over the last 2wks (cramp/headache etc) no reduction in steroids today. He wants to slow it right down. I'm to stay on 10mg pred for the next two weeks, then any reductions from now will only be 2.5mg at a time. The azathioprine is doing it's stuff so that dose stays the same. He's added in phosphate twice a day to try to deal with the cramp. The cramp is likely caused by scarring (cirrhosis) of the liver. On biopsy it showed I had bridging fibrosis.This occurred when I was severely ill and jaundiced, but may have been happening prior to me becoming unwell. The general medical view is that this is not reversible, but he thinks otherwise........hope he's right.People with a diagnosed auto immune condition are more likely to develop other auto immune conditions at the same time, and this is why the blood monitoring is done so closely. He had no idea why I should be testing positive (leukocytes/protein/blood) intermittently for UTI, but suggests I get the surgery to send the next pos sample to test for white blood cells. Maybe to do with the drugs he thinks, (like every other wacky thing going on with my body at the moment). NO BLOOD TEST THIS WEEK HOORAY! Bloods and review in two weeks time............progress. Feeling very tired tonight.

2 comments:

  1. Hi penny not heard anything from you for a wee while, hope you are well x

    ReplyDelete
    Replies
    1. Hi, I'm ok, just have been going through a bit of a negative patch, and couldn't be bothered to keep doing the blog. Will write something now!

      Delete