Terrible night last night. Very little sleep and very uncomfortable. Woke tearful and shattered. Hospital appt this afternoon. Good news, bloods are still coming down, so steroids are doing what they are supposed to (albeit with lots of horrible side effects). However, still not below 100. They have made a tiny reduction in steroids.They think the sore area under right ribs is liver inflamation. Bloods again Friday and hosp again next Monday. If improvement maintained, then they might start the immunosuppressant azanthioprine next week, and then gradually reduce steroids as they increase azanthioprine, which it is hoped will stabilise the condition. It is not without it's own sometimes unpleasant side effects, but is preferable to high dose long term steroids. Whatever I'm on, there will be no escaping regular blood monitoring!! High hopes for sleep tonight