Well I haven't written this for a while due to one thing and another. Over the last few weeks, we have been literally so busy, I just haven't had the time to do anything but essential stuff. I have, however, done my best to stick to the afternoon naps and the healthy (ish) diet. My latest bloods were really positive, with AST at 58 and ALT at 57!!! No major, unmanageable side effect from the azathioprine, which is now at 50mg daily. The pred is down to 15mg daily since Thursday, and I don't have to have bloods or be seen for 2 weeks!!! So all in all, everything is rather positive on the AIH front.
However, very sadly, my Mother on law passed away yesterday morning. She had been unwell for only a week, but they hadn't been able to reach a diagnosis. Unfortunately, on Thursday evening, she was taken to hospital, and they found the cause, but there was nothing that could be actively done. She died peacefully and pain free with all her family around her. To say there will be an enormous hole in our lives and hearts would be an understatement. We are totally bereft and can't imagine life without her.
Hello Penny, I am so sorry to read your sad news, what a terrible shock for you all. I will be thinking of you over the next few weeks.
ReplyDeleteIt is geat that you are now responding so well to your medication and sounds as if the AIH is at last under control. Good that you are still napping as the tiredness may go on for a little while longer yet and you will need your strength at this difficult time. On a very positive note you should soon start looking less like a hamster, less puffy and less hairy too! I hope that Emma and Colleen are ok as they haven't posted for a while and were both suffering. did you manage to meet up with Emma at the hospital? It must have been funny sitting looking at every person wondering if it was her or you! you should agree to wear a red carnation or something!! Anyway, all the best, and my thoughts and prayers are with you all. Love Jo xxx
Hi jo x thanks for your comments x Colleen tends to email me now and is doing ok . Don't know about Emma but fingers crossed for her. I'm a bit wrecked but holding up !
ReplyDeleteHi guys. Just thought I would check in and let you know how things are. First off i am so sorry to hear of your sad news Penny, my thoughts are with you and your family at this sad timexx
ReplyDeleteWell after my last post things went downhill I am now yellow, with numbers nearly in the thousands. I've been very unwell with this flare, so just been laying around not really doing much. The meds don't seem to be bringing things under control. I have hospital again today and should get all my latest results of tests I've had this week.
I'm at the hospital twice a week at the moment but il take that over being admitted.
Take care xxxxxxxxxxxx Emma
Oh Emma! I really feel for you, at least you're at home though. Hope hospital today had some positive news for you. Have they any idea whats caused this? It seemed to come from nowhere. What drugs have they got you on now? I'm sure you don't feel like doing anything but laying around, just get as much rest as poss. Thinking of you xxx
DeleteOh Emma, poor you, you must feel so dreadful and so fed up with it all. Hopefully your latest tests will come up with something and they will be able to help get you better again. At my worst, when I was admitted, my levels were nearly 3,000 and I felt like s--t! I really hope you start to feel better soon. Rest is definitely the only thing and all you probably feel like doing anyway. Take care. love Jo x
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