Lovely sunny day again in Cornwall. Feeling a bit better and have a little more energy today. ALT now 79 (even with only 25mg pred!) They have reduced it to 20mg from tomorrow, and to stay on Aza 50mg for now. Bloods again next Tuesday and to be seen again next Weds 23rd. Thats 3 blood tests in arow that haven't risen.....dare I hope we have turned the corner? I certainly feel a bit better, apart from the never ending cramps in fingers/toes. The routine of having an afternoon nap is the way to go I think. Just have to be really strict and make myself have the rest even if there are other things to do (always!). Vit D results are fine, so I guess the only reason for the cramp is the steroids flushing the potassium out my body, hopefully as the steroids come down this will improve. Heard from the eye hospital re: increased pressure, apparently I won't get an appointment until at least June.......the referral is marked urgent, but apparently they don't view glaucoma tests as urgent....give me strength!!!!

So let me see.....on the negative side..

I have a life long condition that I will have to learn to live with
I've had at least 50 blood tests since last September
My new occupation is attending clinics/obsessing about my condition
I have gained weight
My clothes don't fit
I have a hairy face
My hair is falling out
I look like a hamster
I am covered in bruises
My joints ache most mornings
I'm tired often and have little stamina
I have cramp often
I have glucose in my urine
I have raised intra ocular pressure
I have stomach/reflux problems
My sleep is disturbed
I have URQ discomfort all the time
My bones are at risk of fractures
I've been off work for 9mths...and counting
I'm on a benefit for the first time in my life

On the positive side....

I'm alive
My bloods are improving slowly, so risk of cirrhosis is lessening
I have drugs to counter most of the side effects of the steroids (although they also have side effects!)
I have a lovely home/partner/son/family who are putting up with my moaning
I might just make it back to work in July after all