Monday, 20 January 2014
Seen in clinic. Well, bloods continue to go in the wrong direction. The reason I'm so tired and achy etc is either that I'm experiencing a flare up or it's drug side effects. The consultant decided to increase everything in the hope that it gets back under control. So now I'm on 750mg mycophenolate twice a day and prednisolone back up to 10 mg. I'm between a rock and a hard place, either it will all improve in the next week, or things will get much worse.......no way of knowing. Bloods again Friday and clinic again next Monday. Am seriously pissed off with the whole thing. Have to work tomorrow weds and Friday, should be interesting.
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Penny that is really shi..... That you are back to suffering like this, I don't understand this illness and the drugs that are supposed to make us feel better are making us feel so bad hopefully the increase will have things back under control for you fast, I haven't got a clue what's going on with me at the min, I am getting a lot off discomfort in rightside going round to my back and also an ache in my liver area which makes getting comfy in bed difficult also been feeling sicky in the mornings, going into hospital on the 28th totally shitti... Myself but really hoping they get this sorted soon, it will be a year in feb since I started to feel unwell so I could really be doing with a break, take care and I really hope work is ok for you and you feel better soon xx
ReplyDeleteOh Colleen I'm wrecked! Worked from home this morning and had 2 visits this afternoon. The drive was enough to kill me, then I sat doing an assessment in a patients lounge wondering if I would make it without throwing up! I'll be thinking of you on 28th. They told me the discomfort in the liver/back shoulder is cause the liver had been so inflammed and takes months to go down...as always, try to stay positive, at least we are being well monitored.x
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