Thursday, 3 October 2013
Excellent day! Have been really busy and coped well. Diet ok (9st 2) less cramp today and generally feeling quite well. Emailed my boss last night, and got a lovely positive reply today. There might be an opportunity to work from home for a while when I feel ready (hadn't thought of that)! Stayed awake today except for 1 1/2 hours after lunch. Picked and prepared/froze/stored apples for the winter, walked a couple of dogs, coffee with M's mum, cooked tea and saw to afternoon donkey care. Feeling very pleased with myself...........please God it lasts tomorrow. The trouble with this illness, is that one minute you feel and appear fine, the next, you have sudden exhaustion. There is no pattern. It's really hard for others to understand the effect, I'm still having difficulty grasping it. It's not logical. Usually, if you "overdo" something, you expect to feel tired, have a rest and recover. With this there is no pattern. You can sleep really well but have a dreadful following day. You can have 3 hrs sleep and be lively and bouncing off the walls/ positive. Rest is no guarantee to feeling better. Everything can be apparently going swimmingly, but then you are suddenly weeping and wailing. I've been talking online to another AIH sufferer, who has been living with this for 14 years. She is now running her own business and apparently doing well. But it never goes away. She still has episodes of exhaustion and those around her find the illness difficult to comprehend as she appears well much of the time. It is becoming apparent that this is going to be a life long condition. It will have to be managed as best I can through diet/exercise/drugs/blood monitoring/and just pacing myself. I will have to be stricter in the future as to how much I can manage, and learn to accept I will not be as fast as I like to be/have been. Things that would have taken me 1/2 hr to do are currently either not possible or at best taking twice as long as before.
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