clinic feedback

Very good weekend! Stayed awake all day Sat/Sun. Enjoyed some dog walks/cooking/visitors and general normality. Have susutained the positive feelings and had no tears. Sleep however remains a problem as does skin condition, liver discomfort and cramps! Seen in clinic today. Bloods down to 82........almost normal range. Therefore they have reduced steroids by 5 mg from tomorrow and will reduce by another 5mg next week. Finally get to commence azathioprine (immunosuppressant) tomorrow. I cannot be surprised if this gives some unpleasant side effect, but will just have to accept that. Bloods will be checked again on Friday (as they now have to monitor white blood cells due to risks of azathioprine) and weekly for at least 6wks. If all goes to plan this drug will stabilise the condition and I should be able to return to near normal in time. Feeling very pleased and positive /hopeful for the future now.