Terrible night last night. Very little sleep and very uncomfortable. Woke tearful and shattered. Hospital appt this afternoon. Good news, bloods are still coming down, so steroids are doing what they are supposed to (albeit with lots of horrible side effects). However, still not below 100. They have made a tiny reduction in steroids.They think the sore area under right ribs is liver inflamation. Bloods again Friday and hosp again next Monday. If improvement maintained, then they might start the immunosuppressant azanthioprine next week, and then gradually reduce steroids as they increase azanthioprine, which it is hoped will stabilise the condition. It is not without it's own sometimes unpleasant side effects, but is preferable to high dose long term steroids. Whatever I'm on, there will be no escaping regular blood monitoring!! High hopes for sleep tonight

Best nights sleep in weeks! Could it have been watching strictly, or eating jam sandwiches at 10pm?? Either way slept from 11.30 - 8am solid. Weight still same. Ribs remain uncomfortable all the time, but not enough to stop me eating roast beef and yorkshires tonight. Managed 2 dog walks this morning then donkey care this afternoon. No tears, just anxious about tomorrows results.

Only managed 3 hours sleep last night. Stayed as busy as I could all day with just an hours rest this afternoon. Very little cramp, but skin awful and tender. Still lots of discomfort under right ribs all day. Mood brighter though and no tears at all. Lots of positive comments from British Liver Trust chat room from others in similar situation. Seems diet is the way to go, lots of veg, bit more carbs less protein sugar and fat. Also suggestions of getting tested for vit/min deficiencies and taking various supplements to boost immune system. Will discuss at clinic Monday. Hunger has returned (am stuffing a jam sandwich as I type) despite all fruit efforts today. Weight same at 9 stone. This thing is taking over my life. I cannot switch off from reading/chatting about it and am sure I'm driving everyone insane with tediousness of it all, but can't seem to stop. Just feel like I have to learn as much as possible to maximise my chances and try to gain some control over the situation. Don't know if this is the right way to go, but the alternative would be to just let the medics do their thing and remain passive........surely that wouldn't be right?

Uncomfortable night due to right ribs/?liver. Skin looking terrible, I guess due to steroids, and still a bit yellow. Up at 7am and quite a steady morning. Not feeling so unwell and managed 2x dog walks, coffee with M's mum then off to the surgery for bloods again. Sticking with healthy fresh fruit salad as much as possible to avoid eating so much rubbish, and at least 1 banana to reduce cramps! Weight remains at 9stone whatever I eat. Have stayed positive with no tears today (after wailing to a friend on the phone last night). Bed for a couple of hours this afternoon, then a lovely hour with the donks in the sunshine. 3 dogs boarding so busy weekend ahead. I know I have to take each day/week at a time, but finding it really hard to not think about the future.............absolute crap not being able to plan anything, and so confusing when one minute you are buzzing and the next you keel over with exhaustion.

Not a good day. Started getting discomfort below right ribs last night (just like when all this started weeks ago). Still there all day, feel bloated again and having to wear loose clothes. Nauseous this morning and cramps to hands/feet still there. I even think eyes are tinged a bit yellow again. Due for bloods tomorrow, fingers crossed the levels aren't on the up again. Feel very tired. So much for all the extra fruit and veg.....................may have to buy bannoffee pie again

Have found the British Liver Trust's website and chat room! Lovely to discover others in similar situations and to be able to get advice/support. Discovered that the cramps are probably to do with the steroids and that others have found relief from eating at least 1 banana a day. Went supermarket shopping this morning to stock up on healthy stuff..........aghhhh...........but three puddings at one sitting has to stop! Now on extra fruit/veg, and trying to make it interesting. Felt a bit unwell whilst shopping, then found M in the fruit and veg ailse......she knew I was too tired to manage very well on my own so came to help me ............what would I do without her?Healthy lunch then sleep for a few hours this afternoon. This routine seems to be helping big time, just have to pace myself and stick to only the jobs I plan each day. Managed the donkey care ok again this afernoon. Beginning to wonder if I might be able to return to work in the future, if only part time.

Slept well from midnight last night and felt ok this morning. Managed to do quite a bit (cat feeding, one 1hr dog walk) Back to bed this afternoon for a few hours, and then active from 3-bedtime. Did all donkey care this afternoon and played with our dogs in the garden. Still eating too much.............plan to start eating a more balanced diet (well at least not eating 3 puddings at a time!) Mood brighter, some cramp/discomfort/tiredness but generally a really positive day. Am finally able to get in touch with friends and thank them for support, managing email and phone calls without falling asleep half way through.