Ok........why is it that when there is 9 miles of beach, they have to sit on top of you????!!
Had a lovely break in Dorset, lots of walks and lots of rest. All over too soon, although always good to be home.
Had bloods done just before we went on 16th. had them done again today, and the results of the 16th were really bad news......ALT rising again and back up to 79. Will get todays results tomorrow in clinic........can't say I'm looking forward to it. I'm still on 15mg pred and 75mg Aza. My skin is itching all over and forearms covered in marks/discolouration. Another tooth broke yesterday (thank god they have been back teeth!) Joints ache and am very tired, but hey...............no nausea. Face looks like a hampster, hair falling out etc etc etc....... could live with all of this if the drugs were doing what they are supposed to be doing. Just can't stand this constant battle with endless side effects when there doesn't seem to be any benefit. Once again, am in this nightmare of not being able to plan. I thought I was back on track, and am supposed to be going back to work in about 5 weeks....come on Jo....tell me it's all gonna be alright!?