Ohh dear........seem to have missed several days! Pred now down to 10mg and aza at 75mg. Have felt generally more tired and head achy over the past week. Cramp continues, and is a real pain in the arse, waking me up in the night and generally striking at the most inconvenient times.Urine still testing positive to leukocytes and blood. Have not been as active over the past week either. On a positive note, my sister and her partner came to stay and it was lovely to see them both. I probably stayed up too late and talked too much, but I don't see her often........couldn't miss out. I also managed a meet up with another friend on Monday afternoon, her gift to me......a book on positive thinking..am working on it. Received a very positive letter from occ health too so am feeling good about a phased return to work in the New Year. Bloods tomorrow and hospital Monday......and on it goes

Lovely weekend! Still positive to leukocytes but don't feel too unwell. Still getting cramps, and skin /hair a mess, feeling a bit weary, but have managed near normal activity yesterday and today. Mum and Dad came for lunch, and I cooked it all and didn't mention AIH once (at least I don't think I did).We have had boarding dogs all weekend so have been busy. Also trying to prepare for the predicted storm tonight as we have lots of animals and out buildings to think about. Gates all shut, donkeys and pony in safe, sister in law's birds all secure in case aviary roofs come off, and dogs all hunkered down for the night. Rain now lashing down, but little in the way of wind yet. 4x4 won't start and hall ceiling has sprung a leak.............hey ho.......

Think I have a UTI. Have been feeling below par for a few days. Tested positive for leukocytes/protein/blood (handy being a nurse and having your own test strips)last night and again this morning. Saw duty GP, (with sample in handbag ready for him to send)........he tested it and it was clear. No temp, or obvious symptoms (other than frequency) but am concerned that the steroids might be masking this. Advised to drink and wait. Positive to leukocytes again tonight though. When I suggested he speak to hepatologist, his response was "why?" he also asked me how I got AIH!!!.........not very reassuring when a medic doesn't know you don't "get" AIH........will have to monitor over weekend and speak to clinic Monday for advice.Heps have already stressed that if any problems occur they should be discussed with them. Bloods done today again as planned. Head achy/tired, but have done a dog walk today and various other bits and pieces. Good news, my sister is coming for a few days next week.....hooray!

Appetite huge again and weight up to 9st 4-5lb. Cramp in toes/legs driving me insane, everything tastes of soap/metal. Hair lank and falling out, feel exhausted again. Positive note, occupational health rang today and were supportive of my goal to return to work in the New Year. Don't feel like blogging or anything much today

Have been on the increased dose of azathioprine for 2 days. Feel very tired again and appetite seems to have increased also. No horrid side effects though. Feeling more positive and trying hard to stop obssessing about this condition. It's hard, but apparently every time I open my mouth it's to say something about it. I just haven't been able to switch off from it, think its about trying to come to terms/ajust to the diagnosis and its implications.. However, from now on I'm going to try to think of other things, and realise that other people also have lifelong conditions and they just get on with it. I'm nothing special, and I need to focus on moving on from this. Will unsubscribe from support forums and stop searching for info, and just accept that the hepatologists have it all in hand and will tell me when to be concerned.

Very tired after a late night, so my own fault. Terrible Cornish weather.....very wet and windy, just what you want with dogs/donkeys etc. Everything seems sooooo much harder in the rain! Still unable to walk in wellies so looked like a mad woman in flip flops in this weather. Saw my lovely GP today who was pleased to see how well I looked. The last time she saw me I was completely yellow from jaundice and could hardly walk..she sent me straight to hospital. She is concerned about the osteoporosis risk from the steroids and was not appeased by my saying the hosp had prescribed calcium d3 to address this. She feels I should be on alendronic acid..........hepatologist doesn't feel this to be necessary........who to believe?? Apparently , the hep clinic will do a bone scan in 12months to check for damage! Will have to research myself and see what the difference is.Anyway, as I'm tolerating the azathioprine, they have increased it to 75mg from tomorrow. The Prednisilone is to stay at 15mg for another week. Bloods again Friday and clinic again in two weeks. I am still advised not to have the flu jab yet while they are fiddling with the meds, however I'm also told I'm in the high risk group and now is the time to have it!?! All in all a positive day, but am seriously wrecked tonight and soon off to bed.

Feeling very positive! Have had a good day and been active all day. Best bit........my son and his lovely girlfriend came to dinner and are staying tonight!! Lovely to see them and very enjoyable evening. Very tired now, but don't want it to end. They go again in the morning. Eating healthily (except chocolate trifle for pudding!) weight stable, skin improving, but hair dropping out (side effect of azathioprine I think). No upper right quadrant pain for 2 days, and little cramp. GP and hep clinic tomorrow, hoping for reduction in steroids.