Seen by Proff Cramp today. Pred to stay at 12.5mg for another 3 weeks, then reduce to 10mg.Azathioprine to stay at 75mg. Don't have to go back to clinic (or have bloods done!) for 6 weeks. Everything stable biochemically, so he's happy that things are finally settling. The price to pay however, is all the side effects, which I have to say, I find debilitating. I'm still needing to have bed rest each day, and find I ache constantly and have no stamina. If I push myself and do too much, I have to pay for it for days afterwards. My skin is still a problem, but if I take antihistamines I just fall asleep! I am now finally accepting that this is with me for life, and I will never be my old self again. I will not be well enough to return to my job next month. To perform my role effectively, I need to be able to manage to juggle far more balls than I currently can. It's not just about staying awake/mobile for 4 hrs a day, it requires much more, and I know I just cannot do it.

Alice and Bobbie the donkeys (for Jo)!

Alice is the grey one (10yrs) and Bobbie is her daughter (6yrs). Alice is sporting a liberal covering of sudocrem for treatment of rain scald which she had earlier this year!

This is what you look/feel like when you eat too much spring grass in one go..............or did Kaspar steal my steroids??!!
Things going ok except for intolerable itching. This only started about 2 weeks ago, and is largely on my forearms, but also neck/trunk. Not sure if it's to do with increased Aza? Or photo sensitivity from the aza? Colleen suggested eurax cream, which is brilliant, but would like to know the cause, and why now if its the aza? Had been using factor 30 on anything exposed from the minute the sun came through a few weeks ago. Come on Jo...........you always have the answers!!!