Sunday, 15 December 2013
Amazing! Yesterday I received a letter from the hospital asking me to attend the "Healthy liver clinic" on Wednesday next week.....this was to discuss my progress POST TRANSPLANT!! Perhaps I'm having a transplant Monday afternoon and they will review the progress Wednesday?! I have left a suitably stroppy message on the secretary's phone. You just don't need this sort of admin mistake when you're trying to deal with this. On the advice of a fellow sufferer, I am going armed with various research papers tomorrow in a final bid to persuade them to reduce the azathioprine back to 50mg before we go down the drug change route. Just can't get my head around going back to square one (even if it means continuing side effects by staying on the aza)......am very nervous about risking worse effects and becoming (more) unwell again. Stopped the omeprazole today as it hadn't made any difference.
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Oh for Heaven's sake!! You have to laugh really don't you!?! Quite unbelievable! Good luck for tomorrow, hope it goes well and that you come away feeling more positive and in control of the illness. Jo x
ReplyDeleteOh my god penny that is shocking, mistakes like this just shouldn't happen, good luck at the clinic today look forward to hearing all about it, the carol singing with the donkeys sounds really lovely. Xx
ReplyDeleteThank you both for your good wishes, clinic went well and I got the result I wanted!! xxx
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