Bit of a mad week clinically. Had my liver ultrasound on Monday, saw my GP Tuesday, had bloods taken Thursday and went to hepatology clinic today....my new career. The good news is my ALT/AST remain in normal range and thats been since September, the longest since diagnosis, so all the signs are that I am finally in remission. However, the scan was good in that it didn't show any advanced fibrosis, but confirmed I have chronic liver disease. I guess I already knew that, but sitting opposite a consultant and hearing the words out loud somehow seemed shocking. The bad news is, I have to remain on steroids for at least another 12 months, they won't risk dropping the dose any lower in case it all goes wrong again. He said that I am finally where he had hoped I would be last December. I also will have to have a further liver biopsy in the New Year as apparently whilst the bloods are normal, it's the only way to see exactly whats happening in the liver. Am really NOT looking forward to that again!!!!!
As my bone scan was normal. I'm seriously considering stopping the alendronic acid as it is such an awful drug. Have to have bloods again in 4wks and be seen in clinic again following that.
Feeling exhausted and fed up but trying to be positive.